Our Insights
Insights to Help You Navigate Through the Journey of Early Age Dementia
Getting a Diagnosis
Anyone will tell you that getting a diagnosis for early age dementia, irrespective of the variant, is extremely difficult and often a prolonged process. The are some key lessons we learnt.....
Quitting my job to spend more time with Grace
Quitting my job, was the best decision I ever made. It was an extremely difficult decision because I had been so invested in what I was doing ...
Acceptance and Commitment Therapy
For those struggling with living grief (as I have), I strongly recommend reading about ACT (Acceptance and Commitment Therapy). I picked out on Amazon a nice straightforward workbook targeted at patients rather than therapists.
Organising things before the Dementia became more severe
I watched Grace’s dementia get worse, initial not sure of what she had and then very much being in denial, meaning i left some decisions too late.
Choose your Therapist with Care
I have tried various therapists and I learnt that it is really important to choose one that specialises in living grief and ambiguous loss.
Highly Recommend: Stop Drinking Alcohol Seminars by Allen Carr
Whilst caring for Grace, my dependency upon alcohol significantly increased. This article talks about how I addressed it.
Ambiguous Loss: Learning to Live with Unresolved Grief by Pauline Boss
Pauline Boss's book, "Ambiguous Loss: Learning to Live with Unresolved Grief" is a seminal work in the field of psychology that explores the concept of ambiguous loss.
Grieving: The Dual Process Model
One of the first things my grief therapist talked me through was the Dual Process Model of Grief. Her aims were to make me feel normal how I have been feeling and behaving, and secondly to look at the process of grief differently.
What causes this F@@king Terrible Disease?
It is believed to be caused by a combination of genetic and environmental factors. The disease is thought to be caused by the abnormal accumulation of certain proteins in the brain.
Brain Donation
Have you have considering donating your loved one’s brain to support Early Age Dementia Research? This article provides some initial guidance and links to further information and brain bank sites around the world.