Building a bridge between the FTD clinical trial and community eco community
This evening, I had a meeting with Sabine and her colleague, Susan. They work for a clinical trials company that focuses on Alzheimer’s and FTD. Sabine and Susan are visiting the @alzassociation conference at the RAI in Amsterdam.
I feel incredibly honored that they wanted to sit with me and discuss my story. It seems they want to understand the challenges of looking after and losing someone with FTD. I find it fantastic; it reflects the truly fantastic values of their company. I want to foster this connection so that the caregiving community and those close to loved ones with FTD gain insight into the medical research community and its progress, knowing that their contributions are making a difference.
They are truly wonderful people who show genuine interest in both those suffering from the disease and the caregivers and loved ones. It was a real privilege to spend time with them.
We discussed so much. In particular, we talked about the positive traction in the US regarding FTD, especially through organizations like @aftd_team. In Europe, there are many fantastic ongoing initiatives, and hopefully, we will be able to work together to build increasing awareness collectively @ftd_lotgenoten.
In Bed Early
It’s 21:30, and I’m already in bed. I didn’t sleep particularly well last night, and dealing with all the stuff related to Lauren has taken a lot of energy out of me. But, to be fair to myself, this is probably the most positive and strong I’ve been in a long time.
Finding a New Job
I really need to find a job for myself. I was told that the role I applied for was very impressed with me as a candidate, and I was the best one. However, they decided to go with an internal candidate for the position. I completely accept and understand this decision and have no issues with it at all.
Nurse Smoking in the Care Home
Is it acceptable that nurses (excluding those doing cooking and tea) can have lengthy smoking breaks in the garden where residents are? I am concerned for two reasons: a) my wife is exposed to second-hand smoke in the garden, and b) she can be left unattended in the living room with other residents if the evening shift mostly consists of nurses who smoke. I am surprised the team leader does nothing about this.
New Language Versions of the Book
At the moment, I feel the need to release all the language versions of my first book. Then, I need to focus on completing my second book and making progress with learning Spanish, so I can start focusing on new things. I feel like I’ve lost a bit of big picture momentum, and I need to refocus on my macro goals.
As for dating and relationships, honestly, I don’t need that at all.
